Cracking herself up

My wish

I certainly hope these tiny feet will be used for dancing.

Truncus Arteriosus Surgery Video

This video shows a baby undergoing a Truncus repair just like Ry's. I found it interesting that they placed a 10MM conduit in this preemie, when Ry got only a 9MM and she was full term and a good weight. You want a good size conduit so the need for the next surgery is farther out. She will more than likely have another OHS in a year or two.


http://www.youtube.com/watch?v=HXlWeSGIR7A&feature=related

Details about the video:
Redmond Burke MD, Chief of Pediatric Cardiovascular Surgery at Miami Children's Hospital, demonstrates the operative repair and postoperative recovery for a premature newborn baby with Truncus Arteriosus. The video is graphic. The program website is www.pediatricheartsurgery.com and Dr Burke can be reached at Redmond111@aol.com


Cardiac Program Website: http://www.pediatricheartsurgery.com
Wikipedia: http://en.wikipedia.org/wiki/Redmond_Burke
Youtube channel: http://www.youtube.com/user/Redmond111
Facebook: http://www.facebook.com/redmond.burke

I hope this helps those who are about to go through this to understand this complex surgery. It helped me, but I can't believe little Ry went through this. I loved when they started the heart back after the repair!

Be well friends!
Lee Ann

A little ode to the kids

Here are our babies! Cael as a baby and now with Ry.

The many faces of Ry

She has so many neat faces. Here are a few. She is such a happy baby! She almost has me forgetting she is a heart baby. She's 10 weeks this week! Time flys!

Her zipper

I created this photo for a cake we want to have made for the hospital staff that took care of Ryleigh.

Ryleigh is growing and doing great.

Well they say no news is good news and this is also true of Ryleigh. She's doing so good, eating well, outgrowing her newborn clothes, and keeps me on my toes. She's also a lot like her momma, low maintenance. She goes in a couple of weeks for a cardiology appt. to determine when her cath lab surgery will be, so that will be my next update. Until then enjoy some photos!