January 2015, updates. :-)

Our sweet Ry is thriving, she is 2 years and 6 months on the 24^th of January 2015! She had a cold last week and kicked its ass! She weighs over 27lbs now and her last cardiology appt went better than expected. We know intervention is on the horizon, but we will enjoy the no intervention lane until her next review in June. Developmentally, Ry has experienced no interruptions in her progress, she is the youngest child I have ever known to sing songs, learn and sing her ABC’s and fill in missing words in songs. She loves Itsy Bitsy Spider. She has seen her idol, Mickey Mouse, several times and will be spending a week with him and Minnie in April along with the rest of us!

She is in daycare full time now and we love it, she is progressive super-fast and some say she has the makings of a Mensa!  Smartest little heart hero I know.

She is talking and walking and running the world – she is a boss!

Thanks for checking in on her, more to come soon.

Ryleigh and Cael

Lots of love,

Lee Ann

Life in the no intervention lane

Hello All:
When it is quite, all is well. We have really been enjoying our no intervention time - free of appts! This is the way life should be, a heart mom could get used to this! Although we only have 1 more month of this lovely time. Ry has been growing and changing so much, really coming into herself. She talks so clearly now, saying 2-3 words together. So animated, full of life, and gosh so very happy. Since her last open heart Sept 30th, she has been doing great. I am always shocked when we get news that she even needs an intervention because she looks so good. She is a sleeper and must get that from her daddy, some days it is 9am before she gets up!

We go see her cardiologist and pediatrician again in January - so we are planning to just enjoy the holidays and as much of january as we can and then face whatever the next challenge is - which will likely be another cath to place stents in those pulmonary branches as the open heart did not fix those, at some point we are facing another open heart to fix her leaking valves, which also did not work from her last open heart, but I am not sure of timing but I think the cath will be in the next 2-3 months and the open heart in the next year to 2 if her heart continues to tolerate without compromise (trust me we are hoping it does, I hate open hearts!).

Here is a sweet fall photo of her that her daddy took. She is a true miracle and we just love her to pieces. She is the world to me! She is one amazing kid with a great personality, lots of character, and is so much fun, we always get compliments on how well behaved she is, happy, and just takes it all in, I think she is a mensa in the making - so smart for her tiny age of nearly 17 months (on December 24).

Love the Walkers!

Ryleigh the Super Star

Our sweet Ryleigh!