January 2015, updates. :-)

Our sweet Ry is thriving, she is 2 years and 6 months on the 24^th of January 2015! She had a cold last week and kicked its ass! She weighs over 27lbs now and her last cardiology appt went better than expected. We know intervention is on the horizon, but we will enjoy the no intervention lane until her next review in June. Developmentally, Ry has experienced no interruptions in her progress, she is the youngest child I have ever known to sing songs, learn and sing her ABC’s and fill in missing words in songs. She loves Itsy Bitsy Spider. She has seen her idol, Mickey Mouse, several times and will be spending a week with him and Minnie in April along with the rest of us!

She is in daycare full time now and we love it, she is progressive super-fast and some say she has the makings of a Mensa!  Smartest little heart hero I know.

She is talking and walking and running the world – she is a boss!

Thanks for checking in on her, more to come soon.

Ryleigh and Cael

Lots of love,

Lee Ann

Latest Update on Ry

Ry's echo showed about the same as 6 weeks ago, severe stenosis, regurgitation from valves, and significant concerns. Her cardiologist noted gradients across the homograph/conduit, which indicates she's out growing it. We've been give 6 more weeks of intervention free time. July 31st after her 1st birthday (July 24), we go back for another echo at which time her cardiologist will present her to her team of doctors (cardiology team and surgeons) for intervention options. At this point it could be another cath or open heart. We will know more in 6 weeks. Until then we will enjoy our girl and her first birthday. 

We are hoping to see her walk soon! She tires very easily, but she's been very mobile!