We had our visit with our OB specialist today and finally some good news. Ryleigh was diagnosed with Dandy Walker Variant at 22 weeks due to a large mass (cysts) in the back of her brain that measured 8mm. They told us today that her measurements are on track she is about 29 weeks along and weighs in at a fantastic 2 pounds 13 ounces (13 is my lucky number by the way), also they detected that her brain cyst has shrunk from 8mm to 6mm!!! Wahoo, this is great news.
It is always concerning when two major body systems of a fetus are showing signs of malformation and while we are not out of the woods yet with the brain, the good news is it is shrinking. We have our fetal MRI on Tuesday (5/15) then we meet with the neurosurgeon to see the prognosis and possible outcomes in the next few weeks, which now I have hope she won’t need brain surgery!!! I am elated!Her heart issue obviously won’t change and we will be facing the surgery/recovery/ and lifelong challenges of having a child with CHD, but if we can get the brain system taken care of – it lessens complications!
Some joy and hope to share.