Latest Update on Ry

Ry's echo showed about the same as 6 weeks ago, severe stenosis, regurgitation from valves, and significant concerns. Her cardiologist noted gradients across the homograph/conduit, which indicates she's out growing it. We've been give 6 more weeks of intervention free time. July 31st after her 1st birthday (July 24), we go back for another echo at which time her cardiologist will present her to her team of doctors (cardiology team and surgeons) for intervention options. At this point it could be another cath or open heart. We will know more in 6 weeks. Until then we will enjoy our girl and her first birthday. 

We are hoping to see her walk soon! She tires very easily, but she's been very mobile!